Monday, April 28, 2014

Finally some answers!

February 10th, 2014 was surgery day. I was so scared and nervous but also ready to get this over with. I was told that I would be off work for 2 weeks. After getting things sorted out at work I was ready for this.

Lets just say the prep for surgery sucked. It sucked for me, it sucked for Ryan. We, for sure, tested our marriage if you know what I mean!! The plan was to go in and shoot dye up my tubes to make sure they were clear. My OB said that she would do it laparoscopy and I would just have one small incision in my belly button. She would also rupture any cysts manually and clear out any disease. Boy was she in for it!!

Once she got in there she noticed that I was completely full of Endometriosis. It was everywhere. She described this as sticky chocolate syrup poured all over everything. My ovaries were tucked behind my uterus. They were "kissing". My OB said they were stuck together, stuck to the back of my uterus and they were all covered in the Endo. I had a huge cyst right between my ovaries that she touched ever so lightly and it ruptured everywhere. Pretty sick huh? She knows I am a nurse so she took lots of pictured for me! She pried everything apart and then tried to put everything back where it was suppose to be but there is a good chance it will go back. She cleaned as much of the Endo out as she could. She had to make 2 more incisions in my belly for more "tools" to be added. She shot the dye up my tubes and that all came back clear! Whew!

Recovery sucked. Plain and simple. I was so sore and miserable. Thank god for my amazing husband, family, friends and the Winter Olympics. They brought food over, got me get well gifts and even just came to sit with me. That means more to me than anything. The Olympics took place of that crummy day time television. The prayers were amazing too! Every day got a little better. The last day of my leave from work was the day we would meet with the KU Reproductive Endocrinologist.

February 24th, we met with one of the KU Reproductive Endocrinologists. She is absolutely amazing. I love her. She put it all out there. She is so kind and caring. Most of all she gave us some hope. She officially said that I have Stage 4 Endometriosis. The worst of them all. She confirmed that I DO NOT HAVE PCOS and me being on the medication was wrong. I do not have insulin issues therefore I did not need to ever be put on Metformin. Awesome. She then gave us the stats...

With me having such severe Endo she said first off that Ryan and I have a 1-2% chance of conceiving naturally. Wow. Really? We have a 3-4% chance of conceiving naturally with oral fertility meds. Awesome. Here is where we get into the big stuff. We have a 8-10% chance of getting pregnant with oral fertility meds + IUI (they take Ryan's stuff and inject it into me). Then there is Injectable Meds + IUI which gives us 12-14%. The IVF which gives us 65% chance of getting pregnant.

She said that I will have Endometriosis the rest of my life. There is nothing I can do about it. When I am done having kids, I will have a complete hysterectomy and my ovaries removed. In the meantime, I either need to get preggers ASAP or when I am not preggers or breastfeeding then I will be on medication to keep the Endo from getting worse.

So we decided to start with IUI with oral medications...

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